Make Every Day Celiac Awareness Day

Share:

"If the patient can be cured at all, it must be by means of diet"

~Dr. Samuel Gee

September 13, 1839 – August 3, 1911

We have Dr. Samuel Gee to thank for first recognizing that the key to healing celiac disease lies in the diet alone. One hundred years after his death, we celiacs still live by this principle, and live well, I might add!

Today we have the U.S. Senate to thank for recognizing Dr. Gee's birthday as National Celiac Awareness Day, via S.RES.219. If you can get through all the "whereas" clauses, the Senate lists some good reasons why it is worth learning more about celiac disease, among them:

Whereas celiac disease affects approximately 1 in every 130 people in the United States, for a total of 3,000,000 people;

Whereas the majority of people with celiac disease have yet to be diagnosed;

Whereas celiac disease is a chronic inflammatory disorder that is classified as both an autoimmune condition and a genetic condition; …

Whereas because celiac disease is a genetic disease, there is an increased incidence of celiac disease in families with a known history of celiac disease;

Whereas celiac disease is underdiagnosed because the symptoms can be attributed to other conditions and are easily overlooked by doctors and patients;

Whereas as recently as 2000, the average person with celiac disease waited 11 years for a correct diagnosis;

Whereas 1/2 of all people with celiac disease do not show symptoms of the disease; …

Whereas celiac disease can be treated only by implementing a diet free of wheat, barley, rye, and oats, often called a `gluten-free diet';

Whereas a delay in the diagnosis of celiac disease can result in damage to the small intestine, which leads to an increased risk for malnutrition, anemia, lymphoma, adenocarcinoma, osteoporosis, miscarriage, congenital malformation, short stature, and disorders of the skin and other organs;

Whereas celiac disease is linked to many autoimmune disorders, including thyroid disease, systemic lupus erythematosus, type 1 diabetes, liver disease, collagen vascular disease, rheumatoid arthritis, and Sjogren's syndrome; …

Whereas the Senate is an institution that can raise awareness in the general public and the medical community of celiac disease: Now, therefore, be it Resolved, That the Senate—

(1) designates September 13, 2011, as ‘‘National Celiac Disease Awareness Day’’;

(2) recognizes that all people of the United States should become more informed and aware of celiac disease;

(3) calls upon the people of the United States to observe National Celiac Disease Awareness Day with appropriate ceremonies and activities

Particularly in 2011 — the year the FDA finally moved forward to establish regulations setting standards for gluten-free food labeling — we should all take time to educate friends, family, restaurants, retailers, doctors, teachers … about celiac disease and the importance of truly gluten-free foods for those of us who live gluten-free for such medically-necessitated reasons.

If you haven't already, please consider signing onto our 1in133.org proposed letter to the FDA during this comment period before October 3.

Making your voice heard through our unified response will elevate the volume for the FDA and for food manufacturers considering whether and how they want to venture into the gluten-free market.

Take us seriously. We care. Cross-contamination must be avoided. Gluten-free is not a fad. Telling the FDA that you want federal gluten-free food labeling as soon as possible is the final step in our monumental effort to achieve a uniform standard for "gluten-free" — something we can all cheer about!

Speaking of celebrating, in honor of Celiac Awareness Day, we hosted a Luna Protein Bar giveaway! Luna is one of the latest companies to offer delicious and healthy foods for those of us living gluten-free, with their lower calorie, protein-packed, fiber-rich vitamin and mineral snack solution that actually tastes great.

To learn more about Luna's Protein Bar, have a listen to my Blog Talk Radio interview with their registered dietitian, Tara DelloIacono Thies. To read my review of Luna's protein bars, as well as some other great new gluten-free snack bars, hop to my review here.

And in case you were wondering about Luna's gluten-free protocols, here's their commitment to gluten free:

The processes we use to make the claim for LUNA Protein are as follows:

  • First, we ensure our ingredients are gluten free from our ingredient suppliers.
  • Second, we make sure the facility has good manufacturing processes and are capable of validating a gluten free claim and
  • Third, we test finished product to make sure our products, are indeed, gluten free before reaching consumers.

CONTEST: Luna is giving away THREE great prize packs in our Celiac Awareness Contest:

  • 1 Box of the winner's favorite LUNA Protein Bar flavor
  • 1 super cute LUNA T-shirt
  • 1 cool LUNA Hat
  • 1 fun LUNA Travel Mug
  • 1 yummy LUNA Chapstick

OUR CONTEST IS NOW CLOSED

–>Congratulations to our winners:

Lorraine
Stefani McMinn
Vicki Tate


Congratulations & thanks EVERYONE for the amazing, inspiring, uplifting ways you spread celiac awareness EVERY day!! You are making a difference!

Related Blog

Share:

1 Star2 Stars3 Stars4 Stars5 Stars (No Ratings Yet)
Loading...

Leave a Comment

The maximum upload file size: 8 MB. You can upload: image. Links to YouTube, Facebook, Twitter and other services inserted in the comment text will be automatically embedded. Drop file here

  1. I work as a medical assistant in an OB/Gyn office and I am always telling symptomatic patients to get tested! Also, whenever and wherever I meet a celiac that is newly diagnosed or struggles with following the GF life style, I strongly encourage the to do so and explain why! I even ask them for their email and send them a premade PDF of all the best GF stuff right there on the spot! And of course your flour and website are listed in my PDF!

    Reply
  2. I already like Luna and I’m trying to add you on facebook right now however seems to be some issue with FB as soon as that’s cleared up I’ll add you. I’ve been spreading the word for about the last two years which is when I became aware through my personal trainer.

    Reply
  3. I have 2 children with Celiac (one we call Jules!) and I love reading your posts daily. We’re so excited that Luna has decided to make GF Protein bars! They have been very handy when it comes to after school snacks before volleyball games!

    Happy Celiac Awareness Day :)

    Reply
  4. I love your page! I love Luna bars and now my son will be able to eat them again. Today I an sharing my son’s story on facebook and sharing this contest. Keep it up Jules! Our whole family loves your flour and recipes.

    Reply
  5. I “like” your page and “love” your posts! Thank you for all you do. My son is GF,(so everyone in the house has converted) you have been a tremendous help in our house!

    Reply
  6. I try to take every opportunity to educate the public about celiac disease,its symptoms,the testing and how to follow the diet because my diagnosis was quite accidental and the diet has made such a difference in my life and how I feel. Last week one of my daughters was listening to a co-worker talk about symptoms she was having and said “that sounds like what my Mom used to feel like, maybe you should be tested”. She came home the other night and told me her co-worker had just found out she has celiac disease and my daughter shared all the web sites(including yours!) and lists of products I use.I was so proud of her for spreading the word based on what she has learned from me over the past 8 years. My other daughter is in the food service business and she is better able to meet the needs of customers with food allergies because of her experience at home.

    Reply
  7. I would LOVE to win some LUNA stuff for me and my 3 year old little girl. We are mouth pieces for celiac every single day wherever we go. I am constantly helping those who have recently found diagnosis or educating my family. It would be wonderful to win. :)

    Reply
  8. I posted the link on my Facebook page and brought some yummy GF raspberry cupcakes to the office for breakfast! :) Yummm!

    My coworkers love when I bring GF goodies to the office, they don’t have to feel guilty about eating more than one!

    Reply
  9. I agree with Melissa! I am sharing this announcement on my FB wall fer shur! This is great. We are getting a day on the calendar. I hope it helps bring an opening up of further understanding. Thank you so much for all you have already done to get us to this point.

    Reply
  10. I already “like” you ~ I’m the poster child for Celiac and Gluten Free information. There isn’t a person I know, a restaurant I go to, or any random stranger I meet who isn’t properly informed by me or my children. It’s just our way of life!

    Reply
  11. Oh wouldn’t it be wonderful if there were more understanding people out there. Education and awareness is the only way. Thanks Jules for all you do. :-)

    Reply
  12. If and when we hope gluten free will be a common diet selection, WE are the ones to spread the word to make it happen. Let’s get going, gang, and be pro-active!

    Reply
  13. I posted on my Facebook page about it being Celiac Awareness Day. Whenever I talk to people and they tell me some of their “ailments” I ALWAYS suggest that they be tested for Celiac. I only wish someone had had the sense to test me years ago. It sure would have saved me a lot of misery and anguish.

    Reply

Featured In