Make Every Day Celiac Awareness Day

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"If the patient can be cured at all, it must be by means of diet"

~Dr. Samuel Gee

September 13, 1839 – August 3, 1911

We have Dr. Samuel Gee to thank for first recognizing that the key to healing celiac disease lies in the diet alone. One hundred years after his death, we celiacs still live by this principle, and live well, I might add!

Today we have the U.S. Senate to thank for recognizing Dr. Gee's birthday as National Celiac Awareness Day, via S.RES.219. If you can get through all the "whereas" clauses, the Senate lists some good reasons why it is worth learning more about celiac disease, among them:

Whereas celiac disease affects approximately 1 in every 130 people in the United States, for a total of 3,000,000 people;

Whereas the majority of people with celiac disease have yet to be diagnosed;

Whereas celiac disease is a chronic inflammatory disorder that is classified as both an autoimmune condition and a genetic condition; …

Whereas because celiac disease is a genetic disease, there is an increased incidence of celiac disease in families with a known history of celiac disease;

Whereas celiac disease is underdiagnosed because the symptoms can be attributed to other conditions and are easily overlooked by doctors and patients;

Whereas as recently as 2000, the average person with celiac disease waited 11 years for a correct diagnosis;

Whereas 1/2 of all people with celiac disease do not show symptoms of the disease; …

Whereas celiac disease can be treated only by implementing a diet free of wheat, barley, rye, and oats, often called a `gluten-free diet';

Whereas a delay in the diagnosis of celiac disease can result in damage to the small intestine, which leads to an increased risk for malnutrition, anemia, lymphoma, adenocarcinoma, osteoporosis, miscarriage, congenital malformation, short stature, and disorders of the skin and other organs;

Whereas celiac disease is linked to many autoimmune disorders, including thyroid disease, systemic lupus erythematosus, type 1 diabetes, liver disease, collagen vascular disease, rheumatoid arthritis, and Sjogren's syndrome; …

Whereas the Senate is an institution that can raise awareness in the general public and the medical community of celiac disease: Now, therefore, be it Resolved, That the Senate—

(1) designates September 13, 2011, as ‘‘National Celiac Disease Awareness Day’’;

(2) recognizes that all people of the United States should become more informed and aware of celiac disease;

(3) calls upon the people of the United States to observe National Celiac Disease Awareness Day with appropriate ceremonies and activities

Particularly in 2011 — the year the FDA finally moved forward to establish regulations setting standards for gluten-free food labeling — we should all take time to educate friends, family, restaurants, retailers, doctors, teachers … about celiac disease and the importance of truly gluten-free foods for those of us who live gluten-free for such medically-necessitated reasons.

If you haven't already, please consider signing onto our 1in133.org proposed letter to the FDA during this comment period before October 3.

Making your voice heard through our unified response will elevate the volume for the FDA and for food manufacturers considering whether and how they want to venture into the gluten-free market.

Take us seriously. We care. Cross-contamination must be avoided. Gluten-free is not a fad. Telling the FDA that you want federal gluten-free food labeling as soon as possible is the final step in our monumental effort to achieve a uniform standard for "gluten-free" — something we can all cheer about!

Speaking of celebrating, in honor of Celiac Awareness Day, we hosted a Luna Protein Bar giveaway! Luna is one of the latest companies to offer delicious and healthy foods for those of us living gluten-free, with their lower calorie, protein-packed, fiber-rich vitamin and mineral snack solution that actually tastes great.

To learn more about Luna's Protein Bar, have a listen to my Blog Talk Radio interview with their registered dietitian, Tara DelloIacono Thies. To read my review of Luna's protein bars, as well as some other great new gluten-free snack bars, hop to my review here.

And in case you were wondering about Luna's gluten-free protocols, here's their commitment to gluten free:

The processes we use to make the claim for LUNA Protein are as follows:

  • First, we ensure our ingredients are gluten free from our ingredient suppliers.
  • Second, we make sure the facility has good manufacturing processes and are capable of validating a gluten free claim and
  • Third, we test finished product to make sure our products, are indeed, gluten free before reaching consumers.

CONTEST: Luna is giving away THREE great prize packs in our Celiac Awareness Contest:

  • 1 Box of the winner's favorite LUNA Protein Bar flavor
  • 1 super cute LUNA T-shirt
  • 1 cool LUNA Hat
  • 1 fun LUNA Travel Mug
  • 1 yummy LUNA Chapstick

OUR CONTEST IS NOW CLOSED

–>Congratulations to our winners:

Lorraine
Stefani McMinn
Vicki Tate


Congratulations & thanks EVERYONE for the amazing, inspiring, uplifting ways you spread celiac awareness EVERY day!! You are making a difference!

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  1. I liked both your page and Luna’s on FB. With a 2 year old that is gluten free, I am always explaining why he has his own food when we go out. So many people have no idea why they feel bad–there should really be more awareness.

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  2. I don’t necessarily spread Celiac Awareness, (I don’t have it) but I do promote a healthy diet which includes being gluten free. I have already liked your page and Luna’s. Did anyone see Regis and Kelly this morning? Novak Djokovic is on a gluten free diet as a tennis pro, he is the winner of the US open.

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    • Diana – isn’t that great news about Djokovic?! I’m getting ready to update my post on gluten-free atheletes after his win! It had reflected his win streak after Wimbledon … it’s even more impressive now!

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  3. spread as many articles as I could both on my FB gfadvocate page as well as your article on my own FB. Tweeted and shared several well written articles! Thx Jules for what you’ve done!

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  4. Love LUNA bars! I spread the word to anyone who will listen that food allergies are no joke for people that live with them everyday.

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  5. I already “like” your page and while we don’t deal with Celiac, we do follow a gluten free diet. I run a blog to help moms with kids with food allergies!

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  6. Being GF is such a part of who I am that the topic and the education comes up daily. Ay work, we eat out a lot – meeting meals – and so celiac disease comes up regularly. Luckily we have a number of cafes in the area that are up to speed!

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  7. Celiac Awareness Day is everyday in my house. What I am doing special for today is sending a message to 13 people about Celiac Disease and asking them to pass it on to 13 people, etc. I’m hoping that at least my friends and family become more aware. If I can cause 1 person to be tested, I did my job. =)

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  8. Already like your Facebook page. Today I post in my Facebook status a that I just realized fruity pebbles and cocoa pebbles were gluten free. I can’t wait to try them.

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  9. I am going to post it now on my FB page and I’ve been a source of support for friends and family who are trying to determine if they have gluten sensitivities….all this within my first year of finding out that I have celiac disease…I have it, but it doesn’t have me!!!!!!!!!!!!

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  10. I like Luna on facebook. I tried to bring up gluten free topic when discussing a recent bake sale but it seemed impossible to include items in with the regular items and be safe. So I’m going to suggest that we have a separate fundraiser that is food-free so that everyone can participate!

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  11. I already ‘Like’ you on Facebook, and I often share your links. By sharing today’s link I found out that three of my high school friends are married to people with Celiac Disease by them reposting the article on their page and commenting on it. Woo!

    Also, I made gluten-free muffins for the office today with toothpick flags printed with the gf symbol. :)

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  12. My daughter and I work to make sure the entire family (immediate and extended) understands the disease and the changes it demands. I also bring extra baked goods to work for the SillyYaks there, because items baked with Jules Flour is better even than the GF stuff for sale there, from Hammer to LARABAR.

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  13. I have been spreading the word on my facebook page today that today is Celiac Awareness Day :) …left some links for people to look at.

    Reply

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