Make Every Day Celiac Awareness Day

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"If the patient can be cured at all, it must be by means of diet"

~Dr. Samuel Gee

September 13, 1839 – August 3, 1911

We have Dr. Samuel Gee to thank for first recognizing that the key to healing celiac disease lies in the diet alone. One hundred years after his death, we celiacs still live by this principle, and live well, I might add!

Today we have the U.S. Senate to thank for recognizing Dr. Gee's birthday as National Celiac Awareness Day, via S.RES.219. If you can get through all the "whereas" clauses, the Senate lists some good reasons why it is worth learning more about celiac disease, among them:

Whereas celiac disease affects approximately 1 in every 130 people in the United States, for a total of 3,000,000 people;

Whereas the majority of people with celiac disease have yet to be diagnosed;

Whereas celiac disease is a chronic inflammatory disorder that is classified as both an autoimmune condition and a genetic condition; …

Whereas because celiac disease is a genetic disease, there is an increased incidence of celiac disease in families with a known history of celiac disease;

Whereas celiac disease is underdiagnosed because the symptoms can be attributed to other conditions and are easily overlooked by doctors and patients;

Whereas as recently as 2000, the average person with celiac disease waited 11 years for a correct diagnosis;

Whereas 1/2 of all people with celiac disease do not show symptoms of the disease; …

Whereas celiac disease can be treated only by implementing a diet free of wheat, barley, rye, and oats, often called a `gluten-free diet';

Whereas a delay in the diagnosis of celiac disease can result in damage to the small intestine, which leads to an increased risk for malnutrition, anemia, lymphoma, adenocarcinoma, osteoporosis, miscarriage, congenital malformation, short stature, and disorders of the skin and other organs;

Whereas celiac disease is linked to many autoimmune disorders, including thyroid disease, systemic lupus erythematosus, type 1 diabetes, liver disease, collagen vascular disease, rheumatoid arthritis, and Sjogren's syndrome; …

Whereas the Senate is an institution that can raise awareness in the general public and the medical community of celiac disease: Now, therefore, be it Resolved, That the Senate—

(1) designates September 13, 2011, as ‘‘National Celiac Disease Awareness Day’’;

(2) recognizes that all people of the United States should become more informed and aware of celiac disease;

(3) calls upon the people of the United States to observe National Celiac Disease Awareness Day with appropriate ceremonies and activities

Particularly in 2011 — the year the FDA finally moved forward to establish regulations setting standards for gluten-free food labeling — we should all take time to educate friends, family, restaurants, retailers, doctors, teachers … about celiac disease and the importance of truly gluten-free foods for those of us who live gluten-free for such medically-necessitated reasons.

If you haven't already, please consider signing onto our 1in133.org proposed letter to the FDA during this comment period before October 3.

Making your voice heard through our unified response will elevate the volume for the FDA and for food manufacturers considering whether and how they want to venture into the gluten-free market.

Take us seriously. We care. Cross-contamination must be avoided. Gluten-free is not a fad. Telling the FDA that you want federal gluten-free food labeling as soon as possible is the final step in our monumental effort to achieve a uniform standard for "gluten-free" — something we can all cheer about!

Speaking of celebrating, in honor of Celiac Awareness Day, we hosted a Luna Protein Bar giveaway! Luna is one of the latest companies to offer delicious and healthy foods for those of us living gluten-free, with their lower calorie, protein-packed, fiber-rich vitamin and mineral snack solution that actually tastes great.

To learn more about Luna's Protein Bar, have a listen to my Blog Talk Radio interview with their registered dietitian, Tara DelloIacono Thies. To read my review of Luna's protein bars, as well as some other great new gluten-free snack bars, hop to my review here.

And in case you were wondering about Luna's gluten-free protocols, here's their commitment to gluten free:

The processes we use to make the claim for LUNA Protein are as follows:

  • First, we ensure our ingredients are gluten free from our ingredient suppliers.
  • Second, we make sure the facility has good manufacturing processes and are capable of validating a gluten free claim and
  • Third, we test finished product to make sure our products, are indeed, gluten free before reaching consumers.

CONTEST: Luna is giving away THREE great prize packs in our Celiac Awareness Contest:

  • 1 Box of the winner's favorite LUNA Protein Bar flavor
  • 1 super cute LUNA T-shirt
  • 1 cool LUNA Hat
  • 1 fun LUNA Travel Mug
  • 1 yummy LUNA Chapstick

OUR CONTEST IS NOW CLOSED

–>Congratulations to our winners:

Lorraine
Stefani McMinn
Vicki Tate


Congratulations & thanks EVERYONE for the amazing, inspiring, uplifting ways you spread celiac awareness EVERY day!! You are making a difference!

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  1. I liked Luna’s facebook page. I can start sharing posts and links from you on my facebook, concerning celiac disease, to help other’s know that this is a real and common problem with a lot of people.

    Reply
  2. I tell people what it is when I tell them I can’t have gluten. There are some people I know that have stomach issues, I’m pushing for them to get tested. I talk about it so much at work that people tell me when they see gluten free stuff on tv or at the store. :-)

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  3. My son loves to bake and when we found out he was gluten sensitive he was a bit depressed about how his cakes came out with the gf flours we could find. We were so thrilled to find your flour and taste it!!! He now uses it to enter his contests and tells everyone how important it is to have these wonderful options for people with celiacs.

    Reply
  4. The best that we have to live a rich, full life is to maintain a STRICT gluten free diet and to educate our local communities about the gluten free diet. One of the best ways that you can do this is through your local support group! Support Groups will be the tipping factor in getting the message out about gluten intolerance! Join one now!

    Reply
  5. educating teachers and others that we come in contact with in our community, especially when it involves the need for them to provide a GF alternative for my kiddo!

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  6. My daughter was finally diagnosed when she was 12 with celiac’s disease. I made her first birthday cake with your gluten-free flour Jules! And Luna bars are one of her favs! I have posted a celiac awareness note on my f/b page. It’s been a struggle for us, but getting easier with products like yours that help her foods taste more like the food that she’s been used to for the past 13 years! :)

    Reply
  7. On Celiac Awareness day my daughter celebrated her birthday (it is during the summer) with her classmates. I made s’mores & took a crossword puzzle for each other kids to do. No comments were made to me about the puzzles, but the s’mores theywanted to know when se was going to bring them again.
    Since my daughter was just diagnosed this past summer, it seems that everyday is we are educating someone about it. Yesterday was food day at work…that was harsh but I brought something that I could eat. I do not have a gluten issue, I am doing this to support my daughter!!!

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  8. Celiac awareness as well as information about intolerance to gluten, dairy and other substances is being discussed daily in conversations I have with fellow students, parents, and social media contacts. These days it is hard to find a family that has not been touched in some way, and being informed is the first line of defense in guarding our health. Grass-roots, one-to-one or one-to many personal sharing is most effective and what I participate in the most to spread the word.

    Reply
  9. I already “like: you :-) I drive around with several celiac awareness magents on my car. My daughter who is 7(who has celiac) wears her green celiac awareness bracelet daily. She loves to read her books about celiac to everyone. I talk to people in the grocery stores all the time about celiac!!! Education is the KEY!!!

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  10. I already “like: you :-) I drive around with several celiac awareness magents on my car. I post facts & stats on my facebook at least once a week to educate. I talk to people in the stores all the time about it. Education is the KEY!!!

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  11. I’m pretty new so I’m still in the phase where awareness is being spread TO me. However, learning to live with this life change has taught me (and the people who live, play or work with me) a lot about the GF lifestyle. Six weeks in, it feels a lot less scary than it did when I started.

    Especially after I saw your pierogies video.

    Reply
  12. I’m going to discuss a recent finding I made from J&L health on a potential celiac disease cure (that doesn’t involve the gluten free diet) and have posted on it (it just so happened that it was made right on celiac awareness day).

    The product “Gluten Relief” has replaced the gluten free diet for many CD patients and will probably continue to do so. Read more about it at http://wp.me/p1244N-6k

    Reply
  13. LOVE LOVE LOVE!!!

    “Like” you both :)

    I’m going to continue supporting families living with both type 1 diabetes and celiac however I can.

    I have a passion for advocacy, and appreciate everything YOU do!

    Reply
  14. To promote Celiac Awareness, I try new recipes and share them (and samples!) as often as possible. Whenever we have dinner guests, they eat gluten free right along with us, and it offers great opportunities for conversation. It’s education, one small group at a time.

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  15. I’m THRILLED to discover that Luna bars are gluten free! I’ve been eating these for a few years, but for some reason I thought they weren’t safe for my celiac daughter and kept them far away from her gf specialty foods. Thank you so much–now I can send them in her college care packages!

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    • Hi Jaimie – I love your approach to sampling with friends as education! Thanks for any and all efforts that help each of us living gluten free! To be clear about Luna, ONLY their protein bar line is gluten-free. Unfortunately my favorite Luna Lemon Bars still aren’t gluten-free, but this is a great step in the right direction!

      Reply
  16. well, as usual, i’m a day late. i actually found out at lunch at work yesterday from a fellow celiac that it was awareness day! every day is celiac awareness day for me – i leave comments on web pages with help and guidance for those who are new to the “scene”, i email restaurants asking what items are GF on their menu, i request GF brands at the grocery, i read blogs like yours to get the latest info!

    Reply

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