Make Every Day Celiac Awareness Day

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"If the patient can be cured at all, it must be by means of diet"

~Dr. Samuel Gee

September 13, 1839 – August 3, 1911

We have Dr. Samuel Gee to thank for first recognizing that the key to healing celiac disease lies in the diet alone. One hundred years after his death, we celiacs still live by this principle, and live well, I might add!

Today we have the U.S. Senate to thank for recognizing Dr. Gee's birthday as National Celiac Awareness Day, via S.RES.219. If you can get through all the "whereas" clauses, the Senate lists some good reasons why it is worth learning more about celiac disease, among them:

Whereas celiac disease affects approximately 1 in every 130 people in the United States, for a total of 3,000,000 people;

Whereas the majority of people with celiac disease have yet to be diagnosed;

Whereas celiac disease is a chronic inflammatory disorder that is classified as both an autoimmune condition and a genetic condition; …

Whereas because celiac disease is a genetic disease, there is an increased incidence of celiac disease in families with a known history of celiac disease;

Whereas celiac disease is underdiagnosed because the symptoms can be attributed to other conditions and are easily overlooked by doctors and patients;

Whereas as recently as 2000, the average person with celiac disease waited 11 years for a correct diagnosis;

Whereas 1/2 of all people with celiac disease do not show symptoms of the disease; …

Whereas celiac disease can be treated only by implementing a diet free of wheat, barley, rye, and oats, often called a `gluten-free diet';

Whereas a delay in the diagnosis of celiac disease can result in damage to the small intestine, which leads to an increased risk for malnutrition, anemia, lymphoma, adenocarcinoma, osteoporosis, miscarriage, congenital malformation, short stature, and disorders of the skin and other organs;

Whereas celiac disease is linked to many autoimmune disorders, including thyroid disease, systemic lupus erythematosus, type 1 diabetes, liver disease, collagen vascular disease, rheumatoid arthritis, and Sjogren's syndrome; …

Whereas the Senate is an institution that can raise awareness in the general public and the medical community of celiac disease: Now, therefore, be it Resolved, That the Senate—

(1) designates September 13, 2011, as ‘‘National Celiac Disease Awareness Day’’;

(2) recognizes that all people of the United States should become more informed and aware of celiac disease;

(3) calls upon the people of the United States to observe National Celiac Disease Awareness Day with appropriate ceremonies and activities

Particularly in 2011 — the year the FDA finally moved forward to establish regulations setting standards for gluten-free food labeling — we should all take time to educate friends, family, restaurants, retailers, doctors, teachers … about celiac disease and the importance of truly gluten-free foods for those of us who live gluten-free for such medically-necessitated reasons.

If you haven't already, please consider signing onto our 1in133.org proposed letter to the FDA during this comment period before October 3.

Making your voice heard through our unified response will elevate the volume for the FDA and for food manufacturers considering whether and how they want to venture into the gluten-free market.

Take us seriously. We care. Cross-contamination must be avoided. Gluten-free is not a fad. Telling the FDA that you want federal gluten-free food labeling as soon as possible is the final step in our monumental effort to achieve a uniform standard for "gluten-free" — something we can all cheer about!

Speaking of celebrating, in honor of Celiac Awareness Day, we hosted a Luna Protein Bar giveaway! Luna is one of the latest companies to offer delicious and healthy foods for those of us living gluten-free, with their lower calorie, protein-packed, fiber-rich vitamin and mineral snack solution that actually tastes great.

To learn more about Luna's Protein Bar, have a listen to my Blog Talk Radio interview with their registered dietitian, Tara DelloIacono Thies. To read my review of Luna's protein bars, as well as some other great new gluten-free snack bars, hop to my review here.

And in case you were wondering about Luna's gluten-free protocols, here's their commitment to gluten free:

The processes we use to make the claim for LUNA Protein are as follows:

  • First, we ensure our ingredients are gluten free from our ingredient suppliers.
  • Second, we make sure the facility has good manufacturing processes and are capable of validating a gluten free claim and
  • Third, we test finished product to make sure our products, are indeed, gluten free before reaching consumers.

CONTEST: Luna is giving away THREE great prize packs in our Celiac Awareness Contest:

  • 1 Box of the winner's favorite LUNA Protein Bar flavor
  • 1 super cute LUNA T-shirt
  • 1 cool LUNA Hat
  • 1 fun LUNA Travel Mug
  • 1 yummy LUNA Chapstick

OUR CONTEST IS NOW CLOSED

–>Congratulations to our winners:

Lorraine
Stefani McMinn
Vicki Tate


Congratulations & thanks EVERYONE for the amazing, inspiring, uplifting ways you spread celiac awareness EVERY day!! You are making a difference!

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  1. Thanks, again, Jules, for your incredible recipes & for being such a great advocate for those of us w/Celiac Disease/Gluten Intolerance ! I have long ago ‘liked’ your page & now have ‘liked’ Luna’s. What am I doing to spread Celiac/gluten intol. awareness? I am about to print gf snack suggestion lists to give to our children’s soccer coaches, teammates’ parents & teachers @ their new school–complete w/a little snippet about gluten/intolerance. (While I do miss the 3 teachers @ their old school who were gluten-intolerance-savvy, I get the chance to help educate–hooray!) Also, I am trying to be tolerant of the family, teachers & acquaintences who poo-poo the need for us to live this way!;) Lastly, I am trying to help 2 teens pay attn to their bodies’ responses & not care to eat just like their peers, but to educate themselves & others. (not dx’d Celiac, but are glut. intol; had to debate w/1 ignorant ped MD for 15 min/ b4 she’d even do bloodscreen!)

    Reply
  2. I do my part to spread awareness by educating anyone who will listen. My daughter was diagnosed at early this year at the age of two. I am determined that this diagnosis will not keep her from enjoying a “normal” childhood. I am dedicated to finding good food options for her and getting everyone I know on board to help keep her as safe as possible. I share everything I find and hope that someone recognizes their symptoms and asks to be tested.

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  3. My daughter wore her team gluten free t-shirt (celiac.org) and we made gluten free treats to share witht he 5th grade class and teachers. They posted her picture on the school webpage.

    September 13, 2011 was National Celiac Disease Awareness Day.
    Fifth grader, Isabella Bodgan, was diagnosed with Celiac’s Disease at age seven. As a special treat, Isabella informed her classmates how her body digests food and also brought in special gluten free treats for everyone to try!
    Please click on Aiken News on the right to learn more about Celiac’s Disease

    Reply
  4. every day practically I find myself speaking with someone… in person, online, on phone… about Celiac disease and gluten-free diets. I try to encourage people to just start incorporating gluten-free for a short time to see the difference in their health. I only discovered myself at a late age, how much of a change it was to my overall health, when I incorporate gluten-free meals and snacks to my day… Huge digestive change!…I try also to encourage those that seemingly have no health issues to try gluten-free and see how much more energy they have and better they feel…using at least a partially gluten-free diet as preventative healthcare!
    Cathy B
    pbprojecthope at yahoo dot com
    PS I would Love to try and review the new Luna Protein bars… they look yummy!

    Reply
  5. I promote celiac awareness by not being shy about talking about it with others. I’ve learned that friends and family are interested in learning more and go out of there way to be supportive. I also make sure to frequent places that have gluten free offerings and leave great feedback and compliments to hopefully encourage them to keep it up.

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  6. Jules – Thanks so much for being such a great advocate! My sister and I are still slowly getting started, but we have a blog up and running and are starting to do more awareness work through that! Can’t wait to learn and share more!

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  7. I shared this info on my FB page via the Luna protein bar post. I am in the process of testing for celiac and post often about living gluten free. It’s amazing how many others are doing the same but you don’t know until you speakup!

    Reply
  8. I was diagnosed with celiac disease and 3 of my 5 kids have symptoms. We are known as the “gluten-free” family and I don’t let it stop me from bringing food to picnics and everywhere else. Since your flour, my baked goods are as tasty or MORE tasty than their gluten-filled counter-parts!

    Reply
  9. As a newly diagnosed Celiac, every day is Celiac Awareness Day! I never miss an opportunity to make others informed about this disease. I ordered my 1 in 133 tshirt just yesterday from zazzle. Today, I’m going to a Gluten Free Food Faire, hoping to learn even more info and share my story! I’d love to win and try the Luna products! Thanks for developing your products Jules!

    Reply
  10. I like both on fb….
    My friend who was recently diagnosed tells me I’m his personal GI go-to gal. I love to share my GF recipes I “create” with my non GF friends. Plus, I’ve become the new “expert” at my son’s school.

    Reply
  11. I “like” both pages on FB! I take every opportunity to educate others about Celiac Disease, from the yummy foods I get to eat, to how much heathier I eat to how I lost over 100 pounds!

    Reply
  12. I post gluten free recipes I create to facebook, share excellent blog reviews, and visited 1in133.org to learn how I as one person can help make a difference!

    Reply
  13. I love your site, and already love luna bars also. I was so excited to learn they are now offering gluten free! I buy them by the case when I have them! I share my gluten preferences every day with friends, family and co-workers. They have gained a good education and are always calling me with questions and recipe requests. I will continue spreading the word by wearing my new Luna t-shirt. as soon as it arrives from the contest!!!

    Reply

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