"If the patient can be cured at all, it must be by means of diet"
~Dr. Samuel Gee
September 13, 1839 – August 3, 1911
We have Dr. Samuel Gee to thank for first recognizing that the key to healing celiac disease lies in the diet alone. One hundred years after his death, we celiacs still live by this principle, and live well, I might add!
Today we have the U.S. Senate to thank for recognizing Dr. Gee's birthday as National Celiac Awareness Day, via S.RES.219. If you can get through all the "whereas" clauses, the Senate lists some good reasons why it is worth learning more about celiac disease, among them:
Whereas celiac disease affects approximately 1 in every 130 people in the United States, for a total of 3,000,000 people;
Whereas the majority of people with celiac disease have yet to be diagnosed;
Whereas celiac disease is a chronic inflammatory disorder that is classified as both an autoimmune condition and a genetic condition; …
Whereas because celiac disease is a genetic disease, there is an increased incidence of celiac disease in families with a known history of celiac disease;
Whereas celiac disease is underdiagnosed because the symptoms can be attributed to other conditions and are easily overlooked by doctors and patients;
Whereas as recently as 2000, the average person with celiac disease waited 11 years for a correct diagnosis;
Whereas 1/2 of all people with celiac disease do not show symptoms of the disease; …
Whereas celiac disease can be treated only by implementing a diet free of wheat, barley, rye, and oats, often called a `gluten-free diet';
Whereas a delay in the diagnosis of celiac disease can result in damage to the small intestine, which leads to an increased risk for malnutrition, anemia, lymphoma, adenocarcinoma, osteoporosis, miscarriage, congenital malformation, short stature, and disorders of the skin and other organs;
Whereas celiac disease is linked to many autoimmune disorders, including thyroid disease, systemic lupus erythematosus, type 1 diabetes, liver disease, collagen vascular disease, rheumatoid arthritis, and Sjogren's syndrome; …
Whereas the Senate is an institution that can raise awareness in the general public and the medical community of celiac disease: Now, therefore, be it Resolved, That the Senate—
(1) designates September 13, 2011, as ‘‘National Celiac Disease Awareness Day’’;
(2) recognizes that all people of the United States should become more informed and aware of celiac disease;
(3) calls upon the people of the United States to observe National Celiac Disease Awareness Day with appropriate ceremonies and activities
Particularly in 2011 — the year the FDA finally moved forward to establish regulations setting standards for gluten-free food labeling — we should all take time to educate friends, family, restaurants, retailers, doctors, teachers … about celiac disease and the importance of truly gluten-free foods for those of us who live gluten-free for such medically-necessitated reasons.
If you haven't already, please consider signing onto our 1in133.org proposed letter to the FDA during this comment period before October 3.
Making your voice heard through our unified response will elevate the volume for the FDA and for food manufacturers considering whether and how they want to venture into the gluten-free market.
Take us seriously. We care. Cross-contamination must be avoided. Gluten-free is not a fad. Telling the FDA that you want federal gluten-free food labeling as soon as possible is the final step in our monumental effort to achieve a uniform standard for "gluten-free" — something we can all cheer about!
Speaking of celebrating, in honor of Celiac Awareness Day, we hosted a Luna Protein Bar giveaway! Luna is one of the latest companies to offer delicious and healthy foods for those of us living gluten-free, with their lower calorie, protein-packed, fiber-rich vitamin and mineral snack solution that actually tastes great.
To learn more about Luna's Protein Bar, have a listen to my Blog Talk Radio interview with their registered dietitian, Tara DelloIacono Thies. To read my review of Luna's protein bars, as well as some other great new gluten-free snack bars, hop to my review here.
And in case you were wondering about Luna's gluten-free protocols, here's their commitment to gluten free:
The processes we use to make the claim for LUNA Protein are as follows:
- First, we ensure our ingredients are gluten free from our ingredient suppliers.
- Second, we make sure the facility has good manufacturing processes and are capable of validating a gluten free claim and
- Third, we test finished product to make sure our products, are indeed, gluten free before reaching consumers.
CONTEST: Luna is giving away THREE great prize packs in our Celiac Awareness Contest:
- 1 Box of the winner's favorite LUNA Protein Bar flavor
- 1 super cute LUNA T-shirt
- 1 cool LUNA Hat
- 1 fun LUNA Travel Mug
- 1 yummy LUNA Chapstick
OUR CONTEST IS NOW CLOSED
–>Congratulations to our winners:
Lorraine
Stefani McMinn
Vicki Tate
Congratulations & thanks EVERYONE for the amazing, inspiring, uplifting ways you spread celiac awareness EVERY day!! You are making a difference!
I like you, your flour, blog and recipes. I now like luna too! Yay for gluten free awareness and more and more quality products!
I have already liked your facebook page! I make people aware of gluten allergy by making them some kind of food that they love but it is gluten free. They are usually very surprised that it is so good.
I already like your FB page
What I would do to make everyday Celiac awareness day is-
I would continued to talk about Celiac to all my friend.I would continue to be a voice in my community about living Gluten-Free. I would continue to share my Gluten-Free food at functions so that people know that our food doesn’t have to taste bad.People need to know that you can live a healthy and fulfilled life without Gluten. We have come along way in the years since I’ve been diagnosed. So basically staying vocal with my words and actions is what I would do
I already like you on facebook. I spread awareness about celiacs everyday because I am always talking about it. It is such a huge part of my life.
I am a celiac “survivor”!! I talk to anyone who wants to listen & have helped several friends through the rigors of their early diagnosis as well as sharing recipes & delicious g-free alternatives ~
I love Luna bars. Coconut is my favorite!
I found this website while searching for a cause for my persistent anemia. Ever since I have been gluten free and will continue to spread my knowledge to family, friends, and patients describing symptoms to me as I am a RN. Thank you for all your recipes and I cannot wait to try Luna GF bars.
My children had 2 lemonade stands to raise awareness for Celiac Disease. We had 1 on Sept 13th & 1 on Sept 17th. The first one was for Celiac Awareness Day. We set up at a local Restaurant that serves gluten free food. The second one was during our towns street festival. We set up at the same restaurant & spread awarenss of Celiac Disease. We had brochures from NFCA to hand out & also told people verbally. It is amazing to see how many people never even heard of Celiac Disease! I am very proud of my children for their desire to help others. 50% of the profits from the lemonade stands went to the NFCA & the other 50% went to the Buddy Walk(down syndrom awarenss) that we participate in. Such giving hearts my children have!! So proud of them.
I liked your page on facebook a long time ago. I don’t have celiac disease but I do have a gluten intolerance due to auto-immune disease. I started spreading the gluten free word by explaining why I had to be gf to my friends. Then I started talking about it to my patients (I work for a chiropractor) when they complained of the same symptoms I had. I plan to continue by one day opening up a gluten free bakery/store in my community to help other people out
I am always on the share and educate band wagon. When someone shares with me they or a loved one is having symptoms I explain celiac disease and the problems gluten can cause. And that they should talk to their health care provider. Some say they have been checked and our family doctor said the real gold standard is to give up gluten 100% and see how one feels. So I share that too.
Already like you – I make gluten free yummies for all my “gluten” friends/family – even at my kids’ schools to show them that GF food is delicious!
My daughters and I made gluten free treats made with Jules GF Flour to share with their classes and my co-workers. Along with the snacks, we printed material regarding gluten intolerance and Celiac disease. What an eyeopener! I had so many people asking by the end of the day about celiac disease that I should have taken a vacation day!!! (well, that is what my boss said anyway ;0)
Having not being diagnosed until 4 years ago, I want others to be aware that there is more to chronic illnesses that meets the eye. Since my diagnosis I have had my mother, AND two daughters diagnosed. Wow. Since the treat day at work, all literature was handed out and I had a list of 52 people who had given me thier email addresses. I was overwhelmed by how many folks were wanting information for their families and friends!
Celiac awareness day turned into a ‘forward this email’ day and some of them were going overseas where our kids are stationed in the military. My youngest is 21 and lives on an Air Force base in England… she is also a gluten-free girl ;0)
I am trying to spread the word about Celiac to all my friends and family. Anxious to try Luna bars.
Started a facebook page for my community for moms to help each other out with dinner ideas, recipes and just give each other encouragement. Have encouraged people I know diagnosed with IBS to get retested for celiac since this has underdiagnosed in the past. keep on educating people so they can take better are of their health.
Whenever I bring refreshments to a social function I bring gluten-free. Once people start talking about how good it is that gives me a chance to talk about celiac’s/gluten intolerance. So, they learn something about the disease and get to see that the rumors about GF foods (namely the taste &texture) are not necessarily true. Once they’ve tasted it (usually without prior knowledge that it’s GF) they’re pleasantly surprised! I love the look on people’s faces after they’ve tried the food and found out that it’s gluten-free:-)
I make Gluten Free easy to understand to friends and family. I also use Pinterest to maintain a Pin Board of GF recipes.
I posted on my facebook page about this and I talk to my friends and family about the gluten-free diet my husband must follow.
I focus mainly on cooking and baking fresh, healthy and yummy foods that happen to be gluten free…for everyone. At home I have adapted all of my tried-and-true recipes to be gluten free.
Also, in my communications with my friends (many of whom are now approaching early middle age…), if I here that they are having regular bouts of gastric distress, I suggest that they look into the possibility of gluten intolerance rather than assume they need to pop over-the-counter (or Rx) acid blockers etc…not trying to pretend to diagnose them, but only pointing out that they should not rule it out and should approach their doctor(s) accordingly.
Like!
I would like to know if anyone has a recipe for home made noodles made with Jules flour?
Julie – you can check out my ravioli/tortellini recipe here on my blog, and I’m working on a homemade spaghetti noodle recipe that I’ll hopefully be sharing too!